chronic pain, humor, personal writing

independence day

Last night was the 4th of July. It was also, for me personally, a comedy of errors, a sad little comedy of errors.

You see, fireworks hold a special place in my heart. Every year, I have a deep, inexplicably strong desire to see them.

It has been five years now that I’ve been, to a greater or lesser degree, disabled by extraordinary pain and functional limitations in one leg, a problem which itself is both cause and result of multiple massive surgeries. And it has been almost 28 years of sequelae from the very serious, exceptionally rare congenital muscular disorder that was discovered when I was 16, when my leg more or less exploded as soon as they slit the skin to relieve the pressure in the muscles, a defining characteristic of this crazy syndrome. All the ripple effects of this have spanned nearly three decades, and in the process, have made me, well, a bit of medical mystery, a case study of one.

But I digress. Back to my story: I love fireworks. I hate being sidelined. I have – because I’m a weird 40 something woman who still goes nuts for fireworks – endeavored to get myself to see some each year on the 4th of July for the last five years.

Last night was the closest I got in this endeavor.

So close and yet so far.

Let me explain.

The pain was at a 7-7.5 last night. I cannot walk more than a few dozen feet at a time these days. Good thing, I thought helpfully, that I happen to live on the bottom of the very hill where people come to watch the spectacular city display in the distance.

It’s all just up the hill from me!

Kool, kool. I got this.

Before I leave the apartment – because I both feel and look like poop on a platter, and because my ex boyfriend, a quasi-neighbor, could conceivably be there – I spruce up my hair with dry shampoo and put on red (red, goddammit) lipstick, cuz f*ck that sh!t, if I am gonna have a chance run-in with him and some new lady, I’m gonna look HAWT. So yeah, red lipstick.

Inner Voice: Ya ever heard of lipstick on a pig?

Shut the f*ck up, Inner Voice. We’re doing this. This is the year.

My plan, you see, was to drive as far up the hill as possible, till the road closures, and then park and use my crutches the rest of the way up.

Fail-safe plan!

It can’t be – what – more than .2, .3 miles from my car to the top of the hill? What could possibly go wrong?

So I commence plan.

I walk down the corridor that leads to the parking lot (note to self, it’s stupid to leave crutches in the car out of pride, this hall is long!) I make it to the door, neon green ice pack Velcro-wrapped around my leg, ready for my trek.

This is your Everest, jokes Inner Voice, before dodging just in time to avoid my proverbial ice pick.

I get to the car, drive up the hill as far as I can, park, and grab the crutches out of the back. Plan on track.

I start crutching uphill. I’m passed by an old man carrying portable chairs. I’m passed by some families with little kids and strollers. We are all presumably going to the same place. My hands already stinging from my climb, I imagine nodding to the baby stroller, saying, “Mind if I hitch a ride?”

I chuckle to myself. I then realize the chuckle was out loud. I cough, to stifle another laugh, but somewhat suddenly, and as such seem to scare the little girl in a peach dress passing me on my right. She stops and looks at me and at my crutches, and – you know – I get it. Metal crutches are loud and shiny and maybe a little scary. Even though I’m quite skilled with these things, if I do say so myself. (After well over eight years on crutches, I am certain I’d be an Olympic gold, maybe silver, medalist, if crutching were an Olympic event.)

But the girl scurries ahead and, looking back at me with big eyes, reaches for her mama’s hand.

This makes me want to laugh and cry at the same time.

Head down, I continue my climb. My left leg searing, and a blister already forming on my heel (stupid cute sandals, in case of stupid ex sighting), I begin to question if this is worth it. I throw a quick look back downhill and realize it’d be even stupider to give up now.

As I near my destination, I hear fireworks in the distance. I curse my slow self, sidelined by needing to sit down three times on my way up. Thinking I was hearing the real show, I start to crutch a bit faster.

A guy in a Red Sox hat says to me, “Whoa, be careful there – you don’t want to go and break your other leg now, do ya?”

I think briefly about whether the nearby police presence would take my side or his if I beat him flat to the ground with these things.

Instead, I smile politely and attempt a laugh.

Of course, I immediately think of better retorts (oh don’t you worry your pretty little head, cuz you’re gonna be watching me take home the Olympic gold metal for —) but he’s already too far ahead.

I sigh, more audibly than intended.

Finally, sweating, breathing a bit heavily, I reach my destination. I make my way, clinking and clanking, in the dark, over the uneven ground to find a spot as close as possible to the street.

I choose a place and my crutches make a loud metallic noise as I let them drop beside me. Some people from the group in front of me turn around to look.

Please do not say a goddamn thing.

I lay down the old shirt I thought to bring as a blanket and deposit myself down in the grass. Throbbing heat radiates down my leg.

Welp, I tell my body – inaudibly of course, we did it. We are here. We are finally here – we’re gonna get our fireworks on!

I begin to relax, let my mind drift.

When I was a kid, we would go to Vermont every summer. Those were the happiest memories of my childhood. My parents were still together, we were still a family then. We would gather old plaid blankets, pack some snacks, and go to the nearby high school to watch the fireworks from the football field.

They were probably unspectacular as far as fireworks displays go – it was a small rural town in Vermont in the 1980s after all – but it was a true highlight of my summer.

We would lay down our happy family spread, and take in the – out there – black sky and the – back then – bright stars. My parents would break out their little plastic Chablis glasses, and we kids would eat pretzels and popcorn, and we would wait.

All the other families around us were doing the same. All of us, looking up, expectantly. I remember an almost tangible buzz of anticipation in the summer air.

Then they’d start. We would Oooo and Aaaaah right in sync with the crowd, which – considering the traffic getting out of the school parking lot at the end of the night – must have represented the entirety of that small Vermont town.

But there was a definitive feel-good quality to the whole ritual. We were there together. As a community. As a family. We were a part of something larger. There was, above us, evidence of magic.

Hilariously, there was also evidence of our human absurdities. There was this one guy who – every year – would park himself on the edges of crowd and yell – with a volume and scope that, I realize in hindsight, could only have come from a full six pack of beer:

BOOOOOOOOOOO-MERRRRRRRRR!

After going several years in a row and hearing this guy, we had come to feel it was part of the show. The whole crowd came to understand what Six Pack knew intrinsically: that when he would shout, BOOMER!, we were sure to get a really good, really big Boomer! And we did. Sometimes we would yell along with him.

I remember each year my brother and I would twitter in excitement – Mom! Dad! When’s the BOOMER coming?

And then, as if on cue, the rebel yell:

BOOOOOOOOO-MERRRRRRRR!

We squealed. We knew what was coming next. The crowd knew, too.

And the finale was always spectacular.

It was magic.

Abruptly, quite rudely, I’m brought back to the present – by mosquitos. Lots and lots of mosquitoes.

I had remembered the red lipstick. I had remembered the shirt-blanket. Did I remember bug spray? No, I did not remember the bug spray.

Ha! Inner Voice revels, Lipstick on an idiot pig! Here you are, alone, ex nowhere in sight, in your red lipstick, being bitten alive!

Well, at least I have my phone, I tell Inner Voice in my defense. I’m not really alone! What!! I’m not. I’m gonna text my friend. See, I’m not lame!

Jesus, though, these bugs are vicious!

As I text my friend, I am horrified to realize – it is another fifty five minutes before the fireworks begin.

This is somewhat of a miscalculation on my part.

The blister on my heel stinging, my hands burning, the bugs biting – I didn’t even want to think about my leg. What to do?

I take a deep breath and consider my options. I try to muster the courage to sit through all this for another hour – just to see the fireworks, alone, from a distance. No chance of a Boomer.

Nope. I can’t do it.

What is this pilgrimage for anyhow? A nostalgic trek to a forgotten era. A simpler life. One in which I was parked in the middle of that plaid blanket, planted right in the heart of my family.

F*ck this. I’m out. Let’s go, Lipstick. NOW.

Inner Voice has a point this time, I concede.

I pick up my loud crutches and in one expert (dare I say, Olympian) move I jump up and get going down the hill.

Clink. Clank. Clink.

A guy in a hat with a cooler in hand looks at me going downhill as he’s going uphill.

Say One Word. I dare you!

I want to scream.

BOOOOOOOOOOOM-ERRRR!

Here, we have arrived at the finale of this failed endeavor.

At this point, I can’t help it, but I start to feel sorry for myself. This is the fifth year in a row (and who knows how many times over my lifetime) that I’ve missed the stupid fireworks because of my leg. It is just one hour per year that I need my leg to cooperate. One single hour.

But for five years, that hope has not been my reality.

I fight the tears.

You can’t cry while crutching!

It’s true. I know this from experience. If you do, the tears just sting the corners of your eyes and, with your hands in use, you can’t wipe them away, so they just trickle down your cheeks and into your ears – and, on bad days, drop onto your shirt, leaving dark, telltale wet spots.

Finally, finally, I see my car. I snort at the absurdity of it all – I don’t try to stifle it – everyone else is uphill already. I’m alone in my descent. Hot tears come in spite of my efforts to stop them, or maybe, because of my efforts.

But just as I reach my car, everything hurting – I feel the breeze blow. Just enough that the leaves of the bushes lining the sidewalk rustle. It’s a quiet sound.

On the breeze, I can smell the faint summer scent of linden flower. I stop to dab my eyes. I realize – I can see the moon from here. An unassuming sliver of ombre against a faded gray sky. It is in the opposite direction of where everyone else’s eyes are trained, expectantly waiting.

An old saying one of my sisters shared with me sometime in the last few years, when I’d complained that my life had become the wreckage of its former self:

Barn’s burnt down, but I can see the moon now.

When she first told me this, I didn’t really get it.

I think I get it now.

I laugh and cry at the same time, out loud now, cuz … the barn’s burnt down and, really, who has a fuck left to give.

I get in my car. I take a deep breath. Linden flower in the air, orange crescent moon in the sky, each putting on their own quiet show.

A distant voice climbs inside me, once more, from deep within my memory banks, with a volume and scope that can only come from years of experience:

BOOOOOOOOOO-MERRRR!

I turn the ignition on and head down the rest of the hill home. I won’t be able to see the moon from home, but I will know it’s there.

dating, humor, personal writing

sponge animal

So in a land far far away there once lived a girl who had big dreams. She drew rainbows. She looked for unicorns. She sang on top of coffee tables and did questionable cartwheel dismounts. She loved the smell of crayons, and the look of all the colors lined up in the crayon box. She got chocolate on her nose every time she ate chocolate and it was Glorious. She knew life was just bursting with joy.

Later on, life got hard. Life – her life, to be precise – MY life to be very precise – was hit hard and fast, shattering into a million jaggedy little shards. Like Humpty Dumpty, you can’t just put that sh!t back together again. No, in fact, you gotta make peace with the mess your life has become. Well, no even before that, you must just sit amongst the shards and cry. Sob, really. Oh, you know the kind, where you’ve got more fluids and mucus and sounds coming out of you than you thought possible for a little lady such as yourself.

They call it ugly crying. But ugly crying implies a witness – doesn’t it? It implies it’s ugly cuz someone else is there to see it. Sometimes it’s ugly crying but you’re all by your lonesome. (Then again, if no one is there to see – ALSO, DO NOT LOOK IN THE MIRROR – can it still be ugly crying?…)

In any case, all this crying by yourself on the kitchen floor can just make matters worse, when you think about it – funny. Absurdly, hysterically funny.

I think one night after I’d done a bunch of that kitchen floor sobbing business (some day I’ll get into all the crap that went down that made life go off the rails – no, off the rails makes it sound like it had been on, no more like off the rails of the already-off-the-rails-rails), I was suddenly struck by how ridiculous this situation was.

A grown a$$ woman on the floor, clutching the newly-arrived ashes of her just cremated, first ill suddenly dead three year old cat (baby) and she’s sobbing like it’s her job. Then I remember having the thought, I wonder whether the upstairs neighbors jokingly call me “The Weeper” cuz I’m sure that’s all they ever hear from me (and in my head, I totes register on the neighbors’ radar so prominently that they nickname me, DUH).

And just like that, I’m like – this is actually a wee bit funny.

And I legit started to chuckle, through the sniffling and snorting mucusy mess that I was.

And then I wondered if the neighbors could now hear me laughing and how crazy I must sound – which, you guessed it folks, just made me laugh more, which, yes, then made it all funnier still.

And pretty soon, I wasn’t sure if I was Resilient or flippin’ nuts.

Don’t think I can’t hear you, dear Reader, and I know – maybe you’re right: it is a both / and: resiliency and a touch of insanity (Insanity Lite?). Maybe one needs a bit of nutso to be sanely insane or insanely sane in this nutsotastic world.

Anyway, a couple years ago, when I was starting to date again after being in a long relationship, I remember talking to my bff about what I wanted and didn’t want going forward. And I had the weirdest analogy for it (#shocker): namely, you know those toys for kids that come in those tiny little capsules, but when you put them in water they expand into big sponge animals – dinosaurs or elephants or octopuses (octopi?)? I felt like a sponge animal who kept trying to put herself back into that tiny little capsule, or more to the point, I’d find relationships that made me feel I had to capsule myself up, rein myself in, be something small and tidy just to be loved. (I know, cue the tiny violins.) Cuz really, I was the one doing all this re-capsuling of myself.

You know what, people? I don’t wanna do that BS self censoring, self smallering anymore. (#makingupwordsisfun) I want to be my sponge animal self, soaking up life till I get all big and drippy with it – maybe even unruly and untameable!

Dating again, after a long spell of being all squished back up inside the capsule, I felt suddenly free and sort of massive, spreading my spongey octopi arms out, being all like:

OMG I HAVE ANOTHER ARM!? DID YOU GUYS KNOW I HAD THIS ARM?

OMG AND THERE’S ANOTHER ONE! AND WAIT THEY ALL JUST KEEP GETTING BIGGER!

and

OMG GUYS, DOES MY OCTOPUS BUTT LOOK GOOD IN THESE JEANS?

(Wait, does an octopus have a butt?)

All my dates – those poor unconsenting souls – were like little mirrors that showed me all these arms and tentacles and reach that I didn’t even know I had. (Like when a truck is so big it needs those little mirrors to know how big it is and just where it is in space.) I got kinda addicted to all the little mirrors because it was exhilarating learning how big I really was.

My friends called that my Summer of Love. I just kept on unfurling and unfurling, not wanting to get smaller all over again. I was so happy I felt downright sparkly!

But right at the tail end of the Summer of Love, me and my sparkles fell in love goddamnit – head over octopi arms in love. And slurrrrrrpppp – in I rolled my unfurled limbs and in I rolled my unfurled self, and bit by bit, the re-furling and re-capsuling began. (See, I promised in my first post that I’d give you lots of mixed metaphors, and I DELIVER, People.)

Which is why it was a cruel irony that one reason the guy I call Tornado left me is because he felt I’d made my life and self too much about him.

Okay. So you were right, Tornado. Still a Jerk, but correct on that one thing.

Point is, to circle my octopi arms all the way back around to my point (wait, did I have a real point or just a bag o’ mixed metaphors?)… I feel a new Summer of Love coming on. Maybe this time though, I will remember I am kinda claustrophobic and don’t like tiny capsules. Maybe this time y’all can help me remember. And maybe when the “tragedy” of my life became just a little bit funny to me – when the mucusy snorts turned from cry-snorts to laugh-snorts – is when I remembered my mojo. Like, Ohhhhh yeah! I AM A BAD A$$ SPONGE ANIMAL. Stand back, all you tiny capsules and capsulators, and HEAR ME ROAR.

(Wait, do octopi roar? Do sponge animals? #mixedmetaphorsarefun)

No matter, this is me, roaring.

humor, personal writing

the sun will come out

Do you ever sit down and take a little look-see around your life and think, WHERE THE HELL DID MY MOJO GO?

Yes, that happened to me recently.

For starters, I was, at the time of my existential deliberations, in a kiddie pool at the town rec center pool walking.

Let me set the stage for you. Now I am not very tall, but quite tall enough, thank you very much, to feel painfully visible to the teenage boy lifeguarding, the super-fit serious-swimmers, and the one actual kid (who was, unlike me, in the big girls pool).

So here I am, pool walking for some post-surgical rehab. I already have, as I mentioned in a previous post, the grace of a rhinoceros. Put that rhinoceros in the kiddie pool and require her to put on a swim cap as if she’s about to compete with Michael Phelps, and what you get is a painfully self-conscious rhinoceros.

As I am bouncing away, I notice the lifeguard is looking but trying not to look at me. Oh I see, yes, perhaps it is because I am bouncing not rhythmically up and down, in a regular cadence, but bouncing this way and that, in a helter skelter sort of fashion, zigzagging across the pool without discernible pattern, and catching myself on the side wall every few seconds when I lose my balance. Right. I get it. I look like a crazy person!

It was from this spot that I began to think, WHAT HAVE I COME TO?

Back when I was 7 or 8, I used to have MOJO, you see. I was so confident of my latent charm that I regularly “entertained” my parents’ party guests – even without their specifically requesting I do so! How Very Thoughtful Was I?

In any case, at these parties, I’d cue up the old record player with my favorite album of all time (back then): the soundtrack to Annie: the Movie. The Sun Will Come Out Tomorrow was ready to roll. I had my little brother trained to start playing it when I gave him the signal. I ran down to “center stage,” a coffee table in front of the guests, and I got up on top of it, OF COURSE. From this mark, I put the microphone to my mouth and gave my brother the nod and boom! IT’S ON. I took care to really BELT OUT the words so that they could hear me and not just Annie singing. It’s only fair, you know. These people didn’t come here to listen to a record!!

I sang my little heart out. I even had a “routine” if you can call it that. I flung one arm out here at this part of the song, and then the other got flung out at that part of the song. I knew my stuff. I had watched Hee-Haw. I had seen live shows. This is how I knew, performers have to Take a Bow when they are done. So I did, and yep, there was in my memory some pattering of hands together before the parents’ party guests resumed their conversations.

What happened to this little Annie girl? She was a rising star sure that The Sun Will Come Out Tomorrow. Sure, too, that the clapping of those guests of her parents meant that they really did enjoy her singing and dancing.

It was only later – I shudder to think how long it in fact took – that I realized I can neither carry a tune, nor move my body in space in any kind of way that could be called dancing. Entertaining, maybe. But not dancing, and definitely not pleasing.

So I put my little orphan Annie self in the trunk of childhood by about age 9 or 10. No more singing. No more dancing. Not even (especially not) Karaoke. What happened? Oh, just the sudden birth of SHAME.

Maybe it was my arrhythmic bobbing in the kiddie pool that brought this memory to the fore. What happened to that little kid that didn’t CARE what she looked or sounded like? She just put her WHOLE HEART into it, whatever it sounded or looked like.

I wonder – if my Annie self had somehow not been decimated by the savage trauma of just being a person, would I still have my life mojo? Would my life have turned out differently?

Or is this like asking, if a tree falls in the forest….

But why is it that some people are able to hold onto their little Annie selves, keep them safe from the brutal storms of life, and bring them out, relatively unscathed, when it is safe to be vulnerable?

I will ponder this question later. For now, I will focus my attention on being a bit less of a rhinoceros in the kiddie pool – or, better yet, recognize that if I must be a rhinoceros, maybe I can become less self-conscious of my rhinocery.

In fact, maybe one day in the not too distant future, I will grab the mike, get up on the proverbial coffee table, and downright celebrate my rhinocery!! With a little tune I know called…. (IN UNISON, PEOPLE!): The Sun Will Come Out Tomorrow.

dating, humor, personal writing

my crooked rainbow

This is my first post.

You do not know who the f*ck I am. And you know what? Neither do I, if I’m being real. So we have that in common.

Welcome!

So when I was little, I liked to draw rainbows. I would tear off a giant piece of paper and gather all my best markers. I would put everything I needed out on the floor, my tongue hanging out of the corner of my mouth (as it does, er, did, whenever concentration’s required). With the artistic grace of a rhinoceros, I colored at least with passion- red, orange, yellow, green, blue, purple. Setting out from the bottom left hand corner of the page, I’d make my way, laboriously, up the page, with what I thought was a pretty good rendition of that glorious multi-colored arc sometimes spotted outside after storms. It was just when I would get to the apex of the arc that I would realize I was already within about an inch or two of the right hand edge of the page. @%#!!

Somehow, all my rainbows turned out this way – they looked good from left to right, until you got to that right-hand side of the page, where my rainbow would take a precipitous ninety-degree turn just as it approached the edge and head down in a fierce straight line to the bottom of the page.

I like now to think of this oddball freak of nature as my crooked rainbow.

What happened in the intervening years is this – LIFE.

Life, people. And this life has been sparklingly beautiful and also shockingly brutal. More on that later. For now, let’s just say – IT’S HARD TO BE A PERSON.

So life happened. Sh*t happened. Trauma happened. And I became a person who used to draw crooked rainbows but now looks at the sky waiting, not for rainbows, but for the other shoe.

The other shoe, in my mind, dangles like goddamn Damocles’ sword.

My crooked rainbow is resiliency incarnate. It is a beautiful thing. A little girl, tongue hanging out of mouth, determined to have a beautiful life.

But the other shoe? The other shoe is my worst enemy. What is it, though, that the stoic philosopher, Seneca said? “We suffer more in imagination than reality.”

That’s what I’m talking about. The other shoe. Even if waiting for that other shoe is like waiting for goddamn Godot. Even if that other shoe is all in my goddamn head. Here we are. And so we wait.

Care to wait with me? I think I can promise it’ll be an interesting ride. Full of mixed metaphors, wack wisdom, alarming analogies, and things that make you go, “Huh.” (That last one should be a song, by the way – preferably a RAP song.)

Pleased to meet you. TTYL.